ISAIAH 61:1-4

ISAIAH 61:1-4


The Spirit of the Lord is upon me and has anointed me to
Preach the good news to the poor. .
Bind up the brokenhearted,
Proclaim freedom for the captives,
Proclaim release from darkness for the prisoners,
Comfort all who mourn
Provide for those who grieve in Zion to bestow on them
BEAUTY FOR ASHES
The oil of gladness for mourning
And a garment of praise for a spirit of heaviness

Friday, March 30, 2007

Battling Cancer

I've been working at putting some of my battle with cancer into a book. I decided to post this part of today's writing.
This illness hit me particularly hard because I have always been healthy as a horse. More than that, I was raised to be self-sufficient and I took those lessons to heart. If it could be done, I believed that I could do it.
Anybody remember the 1939 Chevy? As I thought, only a few of you knew without the photo to jog old memories, or inform young minds!
When I was a senior in high school, my dad bought me an old car, a ’39 Chevy much like this one only black and more beat up. What I wouldn’t give to have that thing now. Even then it was old enough to be more than just any old rattletrap. I was secretly rather proud of her. One of her eccentricities was that the transmission wouldn’t shift quite properly. Running, that is rolling, it worked fine. But if the car came to a stop while in third gear, it was stuck there. For a competent stick shift driver, this doesn’t present major problems in most circumstances. It was fairly easy to ride the clutch and manage to get the car rolling and slip it into neutral. Under certain circumstances, however, this manuever was not possible, for example when I pulled into a parking slot facing the brick wall of the local A & W Root Beer drive-in and forgot to pop ‘er into neutral. (If this was Greek to you, ask somebody who enjoys driving a stick shift!)
With the forward maneuver blocked by a brick wall, I had two choices. I could get out the jack, jack up the rear tire and rev the motor to release the transmission, or I could get out my trusty Phillips screwdriver, open the transmission case and change the gears by hand. I usually opted for number two. I could get ‘er running with little fuss and feathers, just a few minutes under the hood.
My dad had an interesting hierarchy of “girls” work and “boys” work. As a girl, I had to demonstrate that I could change a tire—and in the case of the old Chevy, fix the transmission—before he would let me drive alone. But I couldn’t do anything that required crawling under the car, like changing the oil. That was “boys” work.
Dad wouldn’t teach me basic carpentry skills, because wielding a hammer qualifies as “boys” work and is unseemly for a girl to do, but I could fix most electrical appliances. We didn’t believe in throwing anything away; repair was the order of the day. As a result, irons, toasters, coffee pots and other small electricals usually sported one or more bandaids of black electrical tape. I could fix them all, and did multiple times.
My husband didn’t share this urge to fix things. We’d been married about a year when I came home to a missing toaster. Imagine my chagrin when he said he had thrown it in the garbage. I lost my chance at demonstrating my skill since the garbage man beat me home, but soon after our iron proudly sported a black plastic bandaid! Fixed by me!
I did farm work too, but only those tasks deemed appropriate for girls. I was not allowed to drive the tractor with a disk or plow attached, only a wagon. During haying, I drove the tractor and/or the truck with huge loads of hay, but never bucked bales (To the uninformed: bucking bales is lifting them in and out of the wagon or barn, moving them around using a hay hook--picture Captain Hook's prosthesis with a handle attached.) That was fine with me since I hated actually being in contact with hay, and bales of hay are heavy, usually 80 to 100 pounds each. On the other hand if I wanted to drive the pickup (before I had my car) to a church or school function, I’d have to empty the feed from the back – those sacks were also 50 to 100 pounds each.
My sense of self-sufficiency followed me into adulthood and middle age. Even moving around the globe and across the nation didn’t shake it more than temporarily. The idea that “whatever life dished out, I could take or even fix,” remained firmly a part of my psyche.

Until I was diagnosed with breast cancer.

Pastor Phylis 

(Post continued in April 3 post)

Thursday, March 29, 2007


UPDATE
Monday night the kids came over to spend some time with John. We had pizza and conversation. And took this picture.

I spent yesterday resting from the weekend's activities. I'm still very low energy, so I'd guess that the intravenous iron they gave me Monday isn't improving my red blood count much. But I'll find out for sure next week. Tests begin then to see what's what. And then as soon as my system will sustain it, the last of the surgeries.

We went into Chicago with John Tuesday night for a church service. Interesting, to say the least. I was really tired coming home. We went in early and caught a meal at the Frontera Grill. If you ever have a chance for a meal in Chicago, the Frontera is a great place. It's on North Clark and is rated as the 3rd best casual dining restaurant in the U.S. The cuisine is Mexican, but not your typical TexMex stuff. Really great gourmet Mexican food. I had catfish, believe it or not. A little bit of my Missouri heritage with the tortillas, beans and avocado. It was most delicious! Speaking of food, I need a bit of lunch!

Later!

Pastor Phylis

Tuesday, March 27, 2007





Chemotherapy Update

Thank God, Chemo itself is over. Now it's discovering the damages done, and repairing those. Right now my red blood cells are still abnormally low, so that's the first target. I had intravenous iron yesterday to see if that will bring up the count and keep it up. Then it's on to ultrasounds, cat scans, a colonoscopy (yuck) and more blood tests. Last time for the complete blood panel, the cancer markers were way down, which is a good sign. We shall see.

Bob's brother is here from California, so we've been really busy this weekend. Monday I was too tired for a bike ride, so John went riding with the girls. And. . . here are the bike riding pictures. (Especially for North Kingston!!) :) Also, note, I don't have my wig on here. (Somehow it doesn't seem to go with bike riding!). The little one had to clean her bike after the first ride. She really didn't want those white tires dirty! Wet wipes are good for many things!

Recovering Strength,

Pastor Phylis




Thursday, March 22, 2007

Improvements
I'm really on the last set of chemotherapy treatments. That is very exciting. I commented to Rob the other day that I'm not feeling as bad as the first set in this series when I had expected to feel continuously worse. Rob always has interesting insight. He suggested that since I had felt so much better after the month long hiatus following the allergic reaction, that the first one hit hard. Now, there isn't so much difference each time. So, I guess going from good to fairly bad is more noticeable than from fairly bad to slightly worse!! Whatever!

Yesterday I did manage to ride my bike for four blocks. (That's circling one block!) I was much shakier than I expected when I started, but I got the hang of it. (What is it they say about never forgetting how to ride a bike?) But the four blocks was my limit. I had muscle fatigue by then. But it's been 18 months, 3 surgeries, and 8 months of chemotherapy since I've been on a bicycle, so I suppose that isn't too shabby for a first try!

Happy Spring!
Pastor Phylis

Monday, March 19, 2007

Oddities and idiosyncrasies, part II

Chemotherapy
It's oddities and idiosyncrasies, part II

ChemoFog: covered in last blog

Lost Body Parts: nothing new, covered in last blog

Digestion/Food: I'm so grateful that on this set of infusions, I'm experiencing no food aversions. On the first set, after awhile I couldn't taste anything except the most tangy or spicy foods, couldn't digest raw vegetables, found meat to be about as pleasant as shoe leather (and I am VERY carnivorous) and whole grains or anything approaching healthy caused cramps which leaves a diet of white flour, sugar, canned fruit (with yummy syrup). Eggs were my only real source of protein. Alas, I lost not one pound!! :) Small wonder.

Neuropathy: This time the major difficulty (besides ChemoBrain) is numbness in fingers and toes. Not as bad as the spell I had just before Christmas, more annoying than debilitating. The pads on my toes are as numb as can be and feel "fat". (Think going to the dentist and the "fat" feeling of your numbed lip). My toes are tingly and about half numb. My hands are swollen, but not numb. It's only noticeable in a loss of grip. Anything weight 3 or 4 pounds, I can't hold with one hand, like a canister of sugar which went kaboom the other day before I discovered that I have to use one hand on the bottom of the canister (About like you'd teach a 5 year old). Fortunately, I have nothing really important that I need to hold for any length of time (like a baby) or I'd be dropping it regularly.

Inertia: Now there's a problem. The inability to propel oneself off ones derriere doesn't promote productivity. But then I guess during this time healing and not productivity is the goal!! My red blood cell count is low enough to cause fatigue with a few hours of anything approaching normal activity. Mostly Monday and Tuesday, I'm pretty useless because I do more on the weekend. A weekday spend shopping or visiting at Ellis will also land me on the couch for the next 24 hours or so. However, thank God, it has not landed me in the hospital at all. But, I really do have to start some sort of exercise soon or I will lose all vestiges of muscles tone.

Time for chemo today. This is the next to the last one. One more Monday of this and then it's just tests, repairing damage and a couple of surgeries!!

Glory Be!!

Pastor Phylis



Saturday, March 17, 2007

Oddities and Idiosyncrasies of Chemotherapy

CHEMOTHERAPY
It's oddities and idiosyncrasies


ChemoFog
I had so much trouble getting out of the house today. It should have been very simple, really. I simply needed to go get a broken (lost, actually) nail repaired. I grabbed purse and keys and head toward the car when I become aware that it is too cold to go without a coat. I go back in the house for a coat. I'm in the car, coat on, when I realize I forgot to take something for my migraine. (Duh!) So back to the house for meds. I'm almost at the door to go to the car again and remember I forgot to take a water bottle. (Dehydration is still a real and present danger, more so when I've just taken medication). I head back to the fridge for the water bottle, car keys in hand. Halfway to the nail salon, I realized my purse isn't in the seat beside me. Nor was it in the back seat, nor anywhere else in the car. I turned around in the nearest driveway and head back for my purse. Finally, success. I'm out the door with a coat, purse, car keys, and water bottle AND I have taken a migraine pill.

Now, don't get me wrong, I know that I've always been a space cadet. But these days it's more like I'm not the brightest bulb in the batch. And today is not a case in isolation.

Earlier today, I stopped at the grocery store to pick up my checkbook that I left there nearly a week ago. They called the same day, but I kept forgetting to go get it! I was embarrassed to get it, but the manager laughed and asked for my name since she had more than one checkbook left behind. (Okay, so there are other dim bulbs!)

The day I left the checkbook was certainly a unique experience for me. I used to wonder what would happen if something went down that little slit at the end of the grocery conveyor belt, but in 40 years I've grocery shopping I'd never lost anything in belt hell. Until that day!

I purchased two water-filled animals for the girls. They were that plastic that feels like slime and squishy to the touch since substantial air space was left inside. They weren't small either. The frog is about 6 inches long and 4 inches wide and maybe an inch and a half tall. The car (okay, it was an animal-looking car, complete with huge frog eyes) was even taller, maybe 2 and a half or three inches tall. The toys were the last two things I placed on the conveyor belt. I have my checkbook in hand and am waiting patiently for a total. I look up and realize that the toys have disappeared into "conveyor hell" and all that is left visible are the huge hard plastic froggie eyes. I reached out to pull them up to no avail. The checker tried too, then called for help. Apparently there is no emergency release for the belt, nor is there an accessible entry for maintenance. We had to abandon that checkout, cashier and all, pick up all my groceries and move to another checkout. Oh yes, a bagger also went back to get two more little squishy animals. And, I left my checkbook which apparently did not fall into conveyor hell but was left behind, nevertheless.

Lost Body Parts
Besides memory, I also have lost two fingernails (hence, the trip to the nail salon today) and four toenails. (Repairable--but I'll wait for sandal season)

And hair...mine is about half an inch long now. And appears to be light brown with very little red showing so far.

Exit
Ahh...must go. I have dallied too long over these descriptions and find my dear husband is waiting for me!! TaTa for now.

Pastor Phylis



Thursday, March 15, 2007

Chemo Update and lunch out











Chemotherapy Update

I'm continuing to feel better than usual on the week of a treatment. Thank God! I'm tired tonight. I watched my granddaughter for a couple of hours today -- she was home from school sick -- and then had lunch with Rachel and the girls. Anything approaching a normal day makes me very tired, but I still feel good.

The girls tried on my sunglasses today...what is it about dressing up in adult things that is so fun??? But aren't they cute?